Mick and Suzanne Reynolds' son Kieran suffered severe brain damage during a procedure at Bega Hospital in 2015.
Kieran was a lively Year 9 student at Lumen Christi with his future before him. Today he spends his time on a special pressure bed, he is blind, unable to talk and a quadriplegic, requiring 24-hour care.
In December 2018 Mick and Suzanne spoke with the News Weekly after the Southern NSW Local Health District admitted liability for Kieran's brain damage.
Read their story here:Hospital admits liability for Tura boy's brain damage
On Monday evening September 9 their story will air on ABC's Four Corners program.
"As parents and nurses we want to do anything that will prevent this happening again," Suzanne said.
"We want the issues to be addressed and we want change for the better," Mick said.
He is concerned that despite the area having a new hospital, "there is not adequate staffing or appropriate staffing".
Kieran's sister Shannon said she felt she had an opportunity to use her unique perspective to advocate for change.
Shannon said that Kieran's catastrophic brain injury was entirely preventable, and that there were no mitigating circumstances.
"My parents, both nurses, subsequently retired early in order to meet my brother's 24/7 care needs," Shannon said.
"Unfortunately, my story is not uncommon nor will it be the last, unless something is done about rural and regional healthcare in Australia," Shannon said.
"Chronic underfunding, poor oversight and a lack of government led incentives to encourage medical practitioners to live and work in rural and regional Australia means that basic medical procedures can result in catastrophic, life-altering consequences for a patient and their loved ones," Shannon added.
"It is so easy to take for granted the quality healthcare we have at our fingertips in metropolitan areas, but it should not be the case that your postcode can dictate whether your next visit to hospital is your last," Shannon said urging people to watch the Four Corners episode.
"The aim is to make sure this doesn't happen again," Suzanne said.